The story is about a woman named Camara, and her adorable little girl named Anaya. Anaya was born with Infantile Krabbe Leukodystrophy; a rare, terminal disease with an average life expectancy of 2 years. You may have heard of this family's journey on CBC (the link is here). Anaya is fed breast milk to keep her alive, and so the family is in need of donated breast milk. There is also an Initiative which has been set up to cover various needs for Anaya. Here is what Anaya needs in Camara's own words:
"I'm looking for breast milk donations for my daughter Anaya. She is terminally ill with Krabbe Leukodystrophy. We were told to expect her to die at 13 months. She is now 18 months old thanks to breast milk! She does not tolerate formula. Please, please help me keep my baby alive. We can have milk shipped from any city in Canada."
You can read more about it on The Anaya Initiative Facebook Page or on Camara's Blog.
Please take the time to check out the links, to donate if possible, and to share the story with as many people as you can. It's comforting to know that so many people have helped already so that they can enjoy every precious moment with Anaya. Hopefully this family can have some peace and healing in such a difficult and trying time. Thoughts and prayers are with you Anaya and family!
Thank you so much for your help spreading the word!
ReplyDeleteoh that is so sad :(... have you heard of Le Leche?? they are a breast feeding support kind group, they also help with finding mothers breast milk for many different reasons. We have them here in Vancouver BC.
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